Don't have much time but I still wanted to update and Taun is not home to check for grammar so bear with me. We came home on Tuesday and Alex is making huge progress every day. When we came home he could still not walk or talk. He was still so drugged and wiped out. I am staying home the rest of this week to be with him and watch his improvement. As of today, he is walking and signing some things. I will know that he is 100% normal when he starts getting into mischief (ex: drinking from the toilet, smaking his brother, etc...)
He is on an anti-seizure medication called Keppra. They say that sometimes people who are on Keppra can get Keppra-rage. We have seen it and we don't like it. Hopefully his body will adjust to the medication and the rage will go away. He will be on Keppra for a year and then they usually taiper them off of the medication and see how they do. They also gave us Diastat to give him incase of a breakthru seizure. Without insurance, 2 doses cost $700. Thank goodness once again for insurance. I pray we never have to use it but I am glad we have it on hand incase it does happen.
Thanks to all of you for your thoughts and prayers on Alex's behalf. I am so grateful for the Priesthood and all of it's many blessings.
I will post more of the details later.
Craft Camp - Birdhouses!
5 years ago